Being Less than Patient
On Wednesday November 16th I am scheduled for what I hope will be my surgical swan song. This will be my fifth major operation and while I don’t feel remotely squeamish about the details being public, the prospect of explaining things is exhausting. So I found a lovely patient blogger in Sheffield, UK who seems…
Read More“Save the ground for something that grows”
Jehangir Saleh wrote these words about his life with Cystic Fibrosis in 2005. I read them a few months ago but they still give me chills each time they drift back through my mind: “These lungs – which perhaps I should name as to properly address them as they seem to have a mind of…
Read MoreI Went to Texas
At the beginning of May I got a very exciting email from science writer Lizzie Wade inviting me to join her panel Against Ableism at the Science Writers’ Conference in San Antonio, Texas. I immediately agreed (from my phone, frantically typing back as soon as I saw the message), and on Saturday October 29th I…
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